Description
The Patient-Centered Outcomes Research Institute (PCORI) funded the National Patient-Centered Clinical Research Network, PCORnet. PCORnet leverages the power of electronic health data in a national distributed research network (DRN) to conduct patient-centered research. From late 2013 to present, PCORnet has built, refined and expanded its infrastructure to connect various stakeholders in productive research partnerships that leverage the power of large volumes of high-quality health data maintained by partner networks. This panel will focus on the unique attributes and lessons learned in the areas of governance, research capabilities, and sustainability during PCORnet’s evolution toward a cohesive self-governing Network.
This panel will describe PCORnet’s advancement across governance, research infrastructure and overall network sustainability.
Learning Objective: (1)To describe the PCORnet infrastructure and how it has changed over time.
(2)To discuss the lessons learned conducting research in PCORnet.
(3)To describe the process for accessing PCORnet resources and the long-term business model for leveraging and sustaining PCORnet’s innovative infrastructure.
Authors:
Thomas Carton (Presenter)
Louisiana Public Health Institute
Maryan Zirkle (Presenter)
PCORI
Elizabeth Shenkman (Presenter)
University of Florida
Abel Kho (Presenter)
Northwestern
Adrian Hernandez (Presenter)
Duke Clinical Research Institute
Presentation Materials: