Diverse advances in informatics and its applications in biomedicine, healthcare, and everyday life have made it necessary to review the scope of ethics as it applies to this burgeoning field. There are algorithms that learn from human decisions and practices, absorbing certain biases in those decisions along the way. Our ubiquitous, highly convenient mobile and social media also register every move and every purchase we make, every sentiment we share, and every friend we encounter in person or in a call; they create marketable data sets out data they collected by obscure, if not entirely nefarious means. Unprecedented mobility and increasing economic pressure has left many wondering how to look after elderly relations, just when AI visionaries are promising caring “nurse bots”. As individuals press the case to control their own medical records and as the legal climate begins to favor their position, the call has already gone up for records to be held in a mobile device, once again apparently empowering the individual while also handing over far more power to the network. The Internet, the great liberator it was hoped it would become, has also provided a safe environment for dangerous elements who abuse its freedoms. This collaborative workshop will bring together many strands of conversation in AMIA and elsewhere towards a fresh white paper on the new ethics of informatics.
Learning Objective: By virtue of their participation in this workshop, participants will be able to:
1. make ethically informed personal judgements on novel challenging issues; this does not mean that participants will become expert ethicists, but they will have greater appreciation of the ethical point of view;
2. explain what differentiates recent ethical challenges from more traditional issues; how do these new issues differ from or, more accurately, extend the more established concerns for equity, autonomy, privacy and confidentiality, and the injunctions to do good and no harm;
3. contribute ideas and critically review principles and policy papers on these issues.
Anthony Solomonides (Presenter)
NorthShore University HealthSystem
Bonnie Kaplan, Yale University
Eric Pan (Presenter)
Carolyn Petersen (Presenter)
Sherri Sheinfeld Gorin (Presenter)