Abstract Body: Biomedical researchers face two new opportunities 1) increased access to clinical data from electronic health record (EHR) systems for research and 2) making research data collected for one study useful for other research endeavors. Data sharing is essential for expedited translation of research resources into knowledge, products, and procedures to improve human health. Data standards are key to the interoperability and reusability of data, allowing data to be more easily analyzed, shared, and combined with other data. In July 2019, the National Institutes of Health (NIH) published two notices regarding the use of a specific health data standard: Fast Healthcare Interoperability Resources® (FHIR®). In September 2019, the National Library of Medicine awarded two related projects focused on the development and testing of FHIR tools for researchers and advancing sharing of phenotypic information through FHIR. In addition, NIH released an RFI seeking comments on the use of FHIR for research. This session will describe NIH’s and NLM’s ongoing work to support the use of FHIR for research. Each presenter will share their perspective briefly, allowing time for participant interaction during the session. An important objective of the session is to inform the informatics community and gather participant input that will inform and strengthen the work being undertaken by NIH and NLM.


Teresa Zayas-Cabán (Presenter)
National Library of Medicine

Paul Harris (Presenter)
Vanderbilt University

Robert Freimuth (Presenter)
Mayo Clinic

Clement McDonald (Presenter)
National Library of Medicine

Patricia Brennan (Presenter)
National Library of Medicine

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