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Description

As one form of patient-generated health data, patient reported outcomes (PROs) are increasingly utilized, critical data sources for learning health system efforts to continually assess and improve healthcare delivery, quality of care, and population health services. A growing number of health systems prioritize the electronic capture and presentation of PROs (i.e., ePRO systems), necessitating a comprehensive and integrated approach to diverse uses of ePRO systems within complex healthcare organizations. Workshop leaders experienced in the research and application of ePRO systems will share their perspectives on: 1) planning for ePRO systems at the health system level, 2) developing tools for ePRO data reporting and visualization, 3) deploying ePROs systems across diverse clinical environments, and 4) evaluating sustained and ongoing use of ePRO systems. Through attendance at this workshop participants will learn to formulate strategies for user engagement, interface design, data flow and visualization, and workflow modeling for ePROs tools leveraging PGHD in the learning health system.

Learning Objective: 1) Formulate strategies for user engagement, interface design, data flow and visualization, and workflow modeling for ePROs tools leveraging PGHD in the learning health system
2) Articulate the role of citizen science and patient-engagement across the continuum of planning, developing, deploying, and evaluating ePRO systems
3) Appreciate potential pitfalls and strategies for integrating PROs into HIT at large healthcare organizations
4) Contribute to the agenda of needed research for successful integration of ePROs into health systems

Authors:

Elizabeth Austin (Presenter)
University of Washington

Cynthia LeRouge (Presenter)
Florida International University

Andrea Hartzler (Presenter)
University of Washington

Arlene Chung (Presenter)
University of North Carolina School of Medicine

Pei-Yun Hsueh (Presenter)
IBM

Carolyn Petersen (Presenter)
Mayo Clinic

Danielle Lavallee (Presenter)
University of Washington

Presentation Materials:

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